Twenty Questions…About Me!

I'm hoping to create an uplifting community where people feel free to share their struggles. This is a real blog. Here I will share the good the bad and the ugly things that crop up.

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A Throwback to when I was Angry…

  Recently I had a reader tell me how positive I am. This kind of amused me. I remember a time when I was angry, upset and felt totally cheated. Now twenty years post diagnosis I have very different views about the diagnosis than I did when I was first diagnosed. Although I have a…

Just Back from Hiking in Tibet

For the first time in almost seven years I left the house with one of my walking sticks...it was an incredibly hard decision to make. My husband and I were headed out to do some shopping this weekend and it was incredibly hot outside. For me this means weakness, fatigue, and dizziness. I love the heat,…

Paging Dr. Mary Jane

I was using marijuana recreationally when I first noticed the effects it had on my pain and my mood. This is when I started using it medicinally. The problem was, street dealers don't usually place much emphasis on selection or quality control.. You take what you can get and hope for the best. It took me…

Winter vs. Summer

For me, most of my MS symptoms are relatively invisible, especially since I was treated for CCSVI and my visible symptoms disappeared. I definitely felt like I had 10 years prior. However, at that time I had already been diagnosed for fifteen years, with symptoms dating back at least 3-4 years before that. So since the symptoms…

MS Chameleon

So, like everyone with MS, I have had to learn to adapt. Constant changes. I was feeling great (minor daily issues) for close to seven years. Then RELAPSE! That dreaded word anyone with a remitting chronic illness can understand. Suddenly, I'm not great. My daily struggles have turned vengeful. It's like fighting with your body and…